People’s Transformathon: Resources

 

On this page you will find a wealth of resources relating to the six sessions in the People’s Transformathon.

We will continue to add resources to this page, so please check back regularly.

Introduction Session

Session 1

Equality and Narrowing Inequalities

Published Sustainability and Transformation Plans:

Session 2

Realising the Value guides:

Session 3

Services are created in partnership with citizens and communities.

Video, animation & links to further information about Community Health Champions from Duneane, Belfast, Northern Ireland.

For further information:

Session 4

Carers are identified, supported, and involved.

Session 5

Involving patients and their families.

Grapevine

Meet some of the #covmindthegap Twitter gang:

Session 6

Voluntary, community, and social enterprise and housing sectors are involved as key partners and enablers.

Session 7

Volunteering and social action are recognised as key enablers

 

General

Patient Online

Macmillan

Macmillan works with people affected by cancer, professionals and key stakeholders to affect change at a        national level that accounts for every person affected by cancer. We are working to ensure:

  • variation in patient experience is reduced for people living with cancer from frequently ignored communities and groups
  • all people are able to co-design and co-decide what they want and need, to live well with and beyond cancer
  • all people living with cancer have a positive experience of care.

The below are some examples of the way in which Macmillan is engaging with communities and seldom heard groups to understand the root causes of inequalities and co-produce solutions to tackle them:

Macmillan’s Community-led Taskforces approach has been recognised as an example of good practice in co-production and community engagement by the Social Care Institute for Excellence.

The aim for the national taskforces is to understand and tackle health inequalities through effective community engagement with frequently ignored people affected by cancer. Two of the taskforces (LGBT & Cancer; and Mental Health and Cancer) have successfully completed the first exploratory project phase – both projects have reviewed existing evidence, established networks of people affected by cancer and other interested stakeholders willing to work with Macmillan, and started to explore the issues that matter most from these groups. For more information please contact research.learning@macmillan.org.uk

Nesta

Rebuilding your life

We’re developing, rolling out and researching a new and innovative recovery programme called Rebuilding your Life, which provides an enormous paradigm shift from the usual current medical-model provision. It’s presently with people seeking recovery from Chronic Fatigue Syndrome/ME although we strongly suspect that it could be extended to a range of other chronic ill-health conditions to great benefit. The programme was developed through a PPI process (1) and continues in this collaborative ethos at each stage of its delivery and research (2, 3). It builds on the precepts that each of us has an innate internal healing mechanism (mind/body) which we can locate with attention and support, especially within a supportive community and with appropriate facilitation. It’s delivered by facilitators and patients being equal collaborators as each person locates their individual route to recovery. It uses a fantastic resource of the first-hand experience of those who’ve already recovered, who we call recovery role models, with the opportunity for those who recover or are recovering in the current cohort, to become the models in the next cohort. This itself is on-going evidence of the encouraging and positive recovery outcomes. Our vision is to deliver and research this within the NHS.

1. McDermott, C. (2014) Patient and Public Involvement: Case studies in primary care research, National Institute for Health Research, p22-24
2. http://www.oxfordhealth.nhs.uk/resources/2014/01/RYL-poster-Feb-15.pdf
3. Raphael, H; Mair, J; Frossell, S. (2015) Finding new voices for recovery: A narrative from co-learners in an innovative group programme, European Journal of Integrative Medicine, Vol 7, supplement 1, p18-19, 25 Sept 2015

Co-produced mental health improvement in Northamptonshire

 

Miscellaneous

During the event, Tweeters were very generous in sharing links to resources that were relevant to the conversation. You can view them in context in our Storify account of the event; some are also listed individually below.

Six Principles for Engaging People and Communities

Giving Patients an Active Role in their Healthcare: Harvard Business Review

We Can’t Rely on the Same Care Service Models

 


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